Happy Colon

Gut Feelings

Update: January 14 (2013!)


Here’s a random picture that I quite like (since I want a picture in each post but nothing goes with this post except silly things like pictures of pills or Ironman. I took this in Egypt in 2011.

I ended up starting the 6MP earlier than I had planned because my symptoms were getting worse and worse since about January 2nd (a wonderful start to the new year). They were actually so bad that I went on a self-imposed liquid diet for several days and then started working in rice, millet, and eggs very slowly.

The 6MP did not kick in right away like it did in 2009, but at least I’ve started it, and hopefully I’ll notice some effects soon (even though it can take 2-3 months to work). Actually, yesterday was better than the days before, and today was better than yesterday, so maybe it is starting to kick in. Of course, I also reduced my dose of Cipro yesterday, so I guess there’s a chance that played a part in today’s improvement since I think I might be resistant to Cipro by now and maybe it started to hurt rather than help me. I don’t know if that makes sense, but quite often with this flare, things haven’t made sense. So I am going to assume that’s a possibility. At this point, though, I don’t care as much as I did before about knowing what works, as long as something works.

Today the weather was really beautiful. The sun finally came out after days of rain and fog, and the temperature reached 60° (which reminds me, I need to get back to saving the world from global warming once I’m in remission). I went for a short walk with my dad and my dog, took a glorious nap once back home, then went to the Brigham for an iron infusion. (I’m having another set of those…4 down, 1 to go.) I got bloodwork done, too, which I asked for since I’ve been bleeding a lot lately and have had low energy as a result, so I expect I’ll need a blood transfusion and needed the bloodwork to confirm that.

I started seeing a therapist last week. I loved the therapist I saw at Children’s Hospital when I was there for two months, and I learned from that experience that you don’t need to be crying yourself to sleep every night or have symptoms of this-or-that mental issue to benefit from therapy; there’s more to it than that. They can help you see things differently, and that is always a good thing.

In other news, I’m reading two books right now – Anna Karenina, which I read in bed, and Fordlandia, which I read in the bathroom. I’m moving a lot faster through Fordlandia…


13 comments on “Update: January 14 (2013!)

  1. Barbie Walsh
    January 14, 2013

    I love you.

    • Rox
      January 16, 2013

      I love you too, Auntie Barbara. :)

  2. Elaine Meuse
    January 15, 2013

    I believe that, “healing is always available” and “We carry a spark of the Divine within us,” ~Dr. Edward Bach.
    I also believe in you.


    • Rox
      January 16, 2013

      Thanks Mom :) love, Roxanne

  3. Levi
    January 15, 2013

    Keep up the good work! I hope that everything you’re doing to move towards wellness will bring you there quickly!

    • Rox
      January 16, 2013

      Thank you Levi! I hope you are doing well.

  4. Mary Clavin
    January 15, 2013

    Great job on starting therapy. Yes, the results can be astounding and invaluable. I’m in my third month now and I eagerly look forward to my weekly meetings. We have IBD, but hopefullness, tenacity and subsequent heart felt choices are gifts.

    • Rox
      January 16, 2013

      You and I are on the same page, thank you for your comment :)

  5. Mary Clavin
    January 15, 2013

    Since I , too, like correct grammar AND spelling sorry for the typo on hopefulness.

  6. John Meuse
    January 15, 2013

    So, Fordlandia is the bathroom book !

    • Rox
      January 15, 2013

      You bet! The bathroom is where I read the most. The book is really interesting so far, and he hasn’t even been to the Amazon yet.

  7. Senga
    January 20, 2013

    It’s tough this illness. My 13 year old daughter has it, but she is under control with no meds. She has blood occasionally and mucus most of the time, but she eats very simply and I give her 3 x VSL#3 every day. I am so afraid that one day a full on flare will hit her. I hope that never happens. My sister has UC (steroid dependent)/ Crohns and now she has Lupus:(( my brother also has UC/Crohns. This illness is horrific and I pray that one day we can find a cure XX Best of luck.

    Senga Taylor

    • Rox
      January 20, 2013

      I know someone else with UC who manages it just with probiotics; your daughter is so lucky, in that respect. I actually went almost two years without a flare on only a light maintenance drug after I was first diagnosed, but then things began to head south. When this flare started, I ignored it for a month because I didn’t want to go back on prednisone. I wish I knew my Chinese herbalist then, because I would have dealt with the flare right away and prevented it from escalating into what it is now. I feel like major UC flares can be avoided easily without prednisone if the right natural means are used at the first sign of a flare, so I hope that if your daughter does enter a flare, that she can find the way out that works for her.

      It’s too bad IBD runs in your family, and yet at least you guys can understand what each other are going through. I don’t have any family members with UC or Crohn’s, although I am lucky that there is such a large IBD community online. Have you heard of crohnology.com? It’s a neat new site for people with Crohn’s or UC, with health tracking, a Q&A section, and treatment reviews.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s


This entry was posted on January 14, 2013 by in Health/Life Update and tagged , , , .

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 43 other followers

%d bloggers like this: