During this healing process, there is so much that I’ve learned about UC, health, the human body, alternative medicine, and allopathic medicine that I sometimes forget that what I now know is not common knowledge. Just using the term “allopathic” is an example. My vocabulary has increased, and I better understand this world of chronic illness. And it really is another world. I was never interested in the health field before this flare forced me into it. I ate healthy and occasionally exercised, but I couldn’t understand a printout of blood-work or explain how the drugs I was taking worked.
Now, I can talk on an even plane with my doctors when we discuss bloodwork or my symptoms, and I feel comfortable questioning their recommendations. I’ve said no to antibiotics, asked to taper slower on prednisone, disagreed when the nutritionist said it doesn’t matter what I eat as long as I get more calories in, and of course, refused surgery. It’s crucial to be an empowered and active patient. I do my own research online, I talk to my friend with Crohn’s who has been in a similar situation, I get more than one opinion, and I feel comfortable questioning the doctors and asking or requesting them to consider what I would prefer.
Like I said, my vocabulary has expanded. Some terms that I’ve learned:
The list of things that make me happy has been added to, too. I smile and get excited when:
I could go on awhile about other things I’ve learned or how my perspective has changed, but I’m sure it will all come up in future posts, in context rather than in a boring list. So keep reading!